Data Disaggregation Action Network » Our Partners » Resources » Report
REPORT: First of its Kind Analysis From All 50 States Details Standards for Race and Ethnicity Data Collection to Identify Inequities
Published December 12, 2023, this report from The Leadership Conference Education Fund details current standards for collecting race and ethnicity data in all 50 states. The report — “Disaggregation Nation: A Landscape Review of State Race & Ethnicity Data Collection” — provides an unprecedented national overview of race and ethnicity data collection standards. It finds that while some states have made significant progress in collecting accurate, disaggregated race and ethnicity data, others are lagging behind and failing to collect data that meaningfully shed light on disparities that we know exist but cannot quantify.
Policy Resources
- The Leadership Conference Education Fund: Data for Equity: A Review of Federal Agency Equity Action Plans
- The Leadership Conference Education Fund: Information Nation: The Need for Improved Civil Rights Data Collection
- Network for Public Health Law: Public Health Data Disaggregation Legal Handbook
- PolicyLink: Making the Case for Data Disaggregation to Advance a Culture of Health
- National Health Law Program: How Effective Data Privacy Can Promote Health Equity
- NHPI Data Policy Lab at UCLA Center for Health Policy Research: Native Hawaiian and Pacific Islander Data Policy Platform: No Equity Without Data Equity
Resource Hubs
- UCLA Center for Health Policy Research: Resource Library
- Asian & Pacific Islander Public Health Forum: Data Disaggregation
- Federal Committee on Statistical Methodology: Equitable Data Toolkit
- Movement Advancement Project and Whitman-Walker Institute: Resources on advancing LGBTQI+ data inclusion
Research and Data Tools
Disaggregated Data at Work – Dashboards and Data Visualization
- PolicyLink and USC Equity Resource Institute: National Equity Atlas and Data Visualization Basics
- Johnson Center for Philanthropy: Community Insight
- Healthy Democracy, Healthy People: Health & Democracy Index
- Salud! America: Health Equity Report Card
- NYU Grossman School of Medicine: Congressional District Health Dashboard
- U.S. Census Bureau: Detailed Races and Ethnicities in the United States and Puerto Rico
- U.S. Census Bureau: Sexual Orientation and Gender Identity in the Household Pulse Survey
- UCLA Latino Policy & Politics Institute | Latino Data Hub
Research Articles
- Championing the 2021 New York State Law: a Step Towards Data Disaggregation on Asian Americans, Native Hawaiians, and Pacific Islanders | AJPH
- UCLA Center for Health Policy Research: Capturing Racial/Ethnic Diversity in Population-Based Surveys: Data Disaggregation of Health Data for Asian American, Native Hawaiian, and Pacific Islanders (AANHPIs) | Population Research and Policy Review
Reports and Guides
- California Pan-Ethnic Health Network (CPEHN): Analysis of California State Government’s Health and Racial Equity Efforts
- University of Wisconsin Population Health Institute: 2023 County Health Rankings National Findings Report
- Asian Americans Advancing Justice: The Quality of the Decennial Census for Asian American and Native Hawaiian and Pacific Islander Communities (Data Dashboard)
Webinar Recordings
- Arab American Institute: Webinar on the Census Bureau’s DDHC-A Release
- Census Equity Initiative and the Population Reference Bureau: Advancing Equity with American Community Survey Data
- The Leadership Conference: History and Implications of OMB Race and Ethnicity Data Standards
- Network for Public Health Law: Upcoming and past webinars
Revising Directive 15: Federal Race and Ethnicity Data Standards
The U.S. Office of Management and Budget (OMB) is currently in the process of revising its Statistical Policy Directive No. 15: Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity (Directive 15), which sets forth the minimum categories that federal agencies must use when they collect information on race and ethnicity. The Leadership Conference and members of our Data Disaggregation Action Network have called for modernized race and ethnicity data standards, including a requirement for disaggregated race and ethnicity data, that will better reflect the diversity of our communities and help to identify and address disparities.
Additional Resources on OMB Race and Ethnicity Data Standards Revision
Comments from the Data Disaggregation Action Network on OMB’s initial proposals for revising Directive 15:
- The Leadership Conference on Civil and Human Rights
- Asian Americans Advancing Justice | AAJC
- Arab American Institute
- Asian Health Services
- Coalition for Asian American Children and Families (CACF)
- Empowering Pacific Islander Communities (EPIC)
- Mexican American Legal Defense and Educational Fund (MALDEF)
- National Association of Latino Elected and Appointed Officials (NALEO) Educational Fund
- Southeast Asia Resource Action Center (SEARAC)
- UCLA Center for Health Policy Research – Data Equity Center
- Whitman Walker Institute (with LGBTQI+ coalition partners)
Data Disaggregation Action Network » Our Partners » Resources