200+ Civil Rights, Health Care, and Community Groups Urge the Administration to Do Everything in Its Power to Keep People Covered During the Medicaid Unwinding

Dear Secretary Becerra:

In just two years, the Biden-Harris Administration has made incredible progress promoting health equity and bringing millions of people the financial security and health care access that result from high-quality, affordable health coverage. We are grateful for your team’s extraordinary work, led by Centers for Medicare & Medicaid Services (CMS) Administrator Chiquita Brooks-LaSure and Deputy Administrators Daniel Tsai and Ellen Montz, to preserve struggling families’ health care as Medicaid continuous coverage requirements unwind.

In light of these accomplishments, we remain concerned that unwinding could cause the largest Medicaid losses in history, with disproportionate harm experienced by communities of color, mothers, and children. To prevent a civil rights and health equity disaster, we urge you to make the strongest possible use of the powers recently granted by Congress for holding states accountable to preserve eligible families’ health care.

Without vigorous federal intervention, state Medicaid programs are likely to operate as they did in the past. If that happens during the unwinding, the Assistant Secretary of Planning and Evaluation (ASPE) projects that 15 million people will be terminated. Such losses would greatly exceed the largest previous annual drop in Medicaid coverage, when the number enrolled fell by 2 million in 2018 and again in 2019.

Unprecedented Medicaid terminations, focused on historically disadvantaged communities, would deepen already severe health inequities. More than half of those whom ASPE expects to lose Medicaid are people of color, including nearly 5 million Latinos, more than 2 million African Americans, and almost 1 million Asian Americans and Pacific Islanders. Other research suggests that nearly 7 million children are at risk of losing coverage, and that children of color are particularly vulnerable. Among all Black children in America, 13% will lose Medicaid if the program operates as it did in the past, as will 12% of all Native American children, 12% of all Latino children, 10% of all children who are Native Hawaiians or Pacific Islanders, and 6% of all Asian American children in the United States.

Needless red tape and bureaucracy threaten to take a terrible toll. More than half of all people of color and three-fourths of all children losing Medicaid will remain eligible but be terminated because of state administrative requirements, according to ASPE. These projections fit recent history, when states like Tennessee, Texas, and Utah redetermined numerous families and saw huge coverage losses. In each state, more than 80% of all terminated families were dropped only because the state did not receive a response to its requests for information. This happened when forms were mailed to the wrong address or never delivered, the family did not understand the forms, the family could not reach a Medicaid call center to provide requested information, renewal procedures were not accessible to people with limited English proficiency or people with disabilities, or for other reasons.

The Consolidated Appropriations Act, 2023, (CAA) gave you unprecedented authority to prevent such patterns from recurring on a vastly larger scale during the unwinding. If a state does not fulfill “all Federal requirements applicable to Medicaid redeterminations,” CMS can require a corrective action plan, reduce the state’s federal matching rates, impose civil monetary penalties, or place procedural terminations on “hold” pending corrective action.

While many important strategies can limit coverage loss, such as measures to facilitate a smooth transition from Medicaid to CHIP, the Marketplace, or employer-based coverage, we urge you to take four key steps to prevent a tidal wave of paperwork terminations from ending health care for millions of eligible families:

First, CMS mitigation plans should prevent states from wrongfully terminating beneficiaries for purely procedural reasons. CMS is working with states to remedy longstanding violations of federal legal requirements. If a state is implementing a “mitigation plan” to fix those violations, CMS will not use its CAA authority to cut federal matching rates. For a state to benefit from sanction suspension, we believe it should be barred from ending families’ coverage due to legal violations that have not yet been fixed. Accordingly, when a state’s violations threaten to cause procedural terminations of eligible people, its mitigation plan should forbid procedural terminations until the violations end.

Second, CMS should hold state and local Medicaid agencies accountable for compliance with civil rights laws. In §5131(a)(4) and (b), the CAA authorizes CMS to use all enforcement tools if a state violates any “Federal requirement applicable to eligibility redeterminations.”  Such requirements include regulations under Title VI of the Civil Rights Act of 1964 and Section 1557 of the Affordable Care Act barring practices that have discriminatory effects, based on race or national origin, unless those practices are necessary to accomplish a substantial legitimate objective. The Administration has already made clear that a failure to make redetermination processes accessible to people with limited English proficiency and to people with disabilities violates federal civil rights laws. Those laws can also be violated by other renewal practices that threaten to trigger significant procedural terminations with discriminatory effects, such as:

• Underfunding of call centers that causes prolonged delays and effectively prevents telephonic renewal. Families of color disproportionately need fully accessible call centers, as such families face systemic barriers to receiving and providing information on-line and in-person. Compared to others, people of color are less likely to have broadband access, digital fluency, and jobs that provide paid time off to meet with Medicaid staff.
• Using complex language on essential forms and notices that is incomprehensible to people with low literacy skills, who disproportionately include people of color and immigrants.
• Refusing to let Medicaid plans and providers help their members and patients renew coverage, including through completing forms telephonically. Without one-on-one assistance completing renewal forms that could be at least 8 pages long—longer than the long-form federal income tax return—families of color will suffer disproportionate terminations. As the White House Office of Management and Budget observed, administrative burdens like form completion “do not fall equally on all entities and individuals, leading to disproportionate underutilization of critical services…, often by the people and communities who need them the most. Burdens that seem minor … can have substantial negative effects for individuals already facing scarcity. ”

Third, CMS should promote transparency and accountability by publishing state unwinding and performance indicator data as soon as possible. Without rapid publication, stakeholders may be unable to intervene in time to prevent significant coverage losses. The consequences of delayed publication could be particularly serious in many of the states where most Medicaid beneficiaries are people of color. To prevent rapid, inequitable losses, CMS cannot let the risk of data errors deter the prompt release of preliminary numbers. Instead, CMS should publish state reports as soon as possible, noting that the numbers are preliminary and subject to later correction. America has long used this approach for employment statistics, releasing each month’s preliminary numbers during the first week of the following month.

Fourth, CMS should hold states accountable for renewing coverage based on data matches “to the maximum extent practicable,” as required by Affordable Care Act (ACA) §1413(c)(3). This requirement, which applies to all beneficiaries, including older adults and people with disabilities, eliminates the need for eligible people to complete paperwork. Any state with data-based renewal rates far below its peers is, by definition, failing to achieve such rates at “maximum practicable” levels. We believe longstanding problems with a state’s eligibility system should not affect CMS’s determination of the maximum practicable level of data-based renewals. A state’s past refusals to modernize its systems should not be rewarded by lessening the state’s duties to protect its residents. Eligible people must not be terminated because they did not complete paperwork telling the state what it should have been able to learn on its own.

The steps we urge would protect the Biden-Harris Administration’s extraordinary legacy of bringing quality, affordable health coverage to more people than ever before in our country’s history. Please know that the undersigned organizations stand ready to support your efforts to protect the more than 90 million people in America who now rely on Medicaid and CHIP for their health care. For further information, please feel free to contact Joyce Liu at the Asian & Pacific Islander American Health Forum ([email protected]),  Deborah Weinstein at the Coalition on Human Needs ([email protected]), Peggy Ramin at the Leadership Conference on Civil and Human Rights ([email protected]), Lisa Malone at NAACP ([email protected]), Chandos Culleen at the National Council of Urban Indian Health ([email protected]), Morgan Polk at the National Urban League ([email protected]), Andrea Harris at Protect Our Care ([email protected]), or Stan Dorn at UnidosUS ([email protected]).

Sincerely,

National organizations

ACA Consumer Advocacy

African Bureau for Immigration and Social Affairs (ABISA)

All4Ed

Allergy & Asthma Network

Alliance for Women’s Health and Prevention

Alliance of Community Health Plans (ACHP)

Allies for Independence

American Academy of Pediatrics

American Association of People with Disabilities

American Association on Health and Disability

American College of Physicians

American Friends Service Committee

American Geriatrics Society

American Heart Association

American Kidney Fund

American Lung Association

American Muslim Health Professionals

American Public Health Association

America’s Physician Groups

Asian & Pacific Islander American Health Forum

Asian Pacific Institute on Gender-Based Violence

Association for Community Affiliated Plans (ACAP)

Association of Asian Pacific Community Health Organizations (AAPCHO)

Association of Maternal & Child Health Programs

Autistic Self Advocacy Network

Bazelon Center for Mental Health Law

Binational Institute of Human Development

Campaign for Tobacco-Free Kids

Caring Across Generations

Catholic Health Association of the United States

Center for Elder Law & Justice

Center for Law and Social Policy (CLASP)

CenterLink: The Community of LGBT Centers

Child Neurology Foundation

Children’s Advocacy Institute

Children’s HealthWatch

CHW Strength

Coalition for Asian American Children and Families

Coalition on Human Needs

Community Catalyst

Compassion & Choices

Congregation of Our Lady of Charity of the Good Shepherd, U.S. Provinces

Consumers For Affordable Health Care

COVID Survivors for Change

Center for the Study of Social Policy (CSSP)

Cystic Fibrosis Foundation

Disability Law Center

Disability Policy Consortium

Disability Rights Education and Defense Fund (DREDF)

Epilepsy Foundation

Families USA

First Focus on Children

Foundation for Sarcoidosis Research

Health & Medicine Policy Research Group

Health Care Voices

HIV Medicine Association

Hunger to Health Collaboratory

JDRF

Justice in Aging

Kappa Alpha Psi Fraternity, Inc.

LatinoJustice PRLDEF

Lawyers’ Committee for Civil Rights Under Law

LeadingAge

League of Women Voters of the United States

Legal Action Center

MANA, A National Latina Organization

March of Dimes

Medicare Rights Center

Mental Health America

MomsRising

NAACP

National Alliance of State & Territorial AIDS Directors (NASTAD)

National Action Network

National Advocacy Center of the Sisters of the Good Shepherd

National Association of Hispanic Nurses

National Association of Community Health Workers (NACHW)

National Association of Hispanic Federal Executives

National Association of Pediatric Nurse Practitioners

National Association of School Nurses

National Association of Social Workers

National Birth Equity Collaborative

National Center for Medical-Legal Partnership

National Center for Parent Leadership, Advocacy, and Community Empowerment (National PLACE)

National Council of Asian Pacific Islander Physicians

National Council of Jewish Women

National Council of Negro Women (NCNW)

National Council of Urban Indian Health (NCUIH)

National Disability Rights Network (NDRN)

National Employment Law Project

National Family Planning & Reproductive Health Association

National Health Care for the Homeless Council

National Health Council

National Health Law Program

National Hemophilia Foundation

National Hispanic Medical Association

National Immigration Law Center

National Kidney Foundation

National Latina Institute for Reproductive Justice

National League for Nursing

National Multiple Sclerosis Society

National Network for Youth

National Organization for Rare Disorders

National Organization for Women

National Partnership for Women & Families

National Patient Advocate Foundation

National Resource Center on Domestic Violence

National Rural Health Association

National Urban League

National Women’s Law Center

Network Lobby for Catholic Social Justice

Partners In Health

Partnership for America’s Children

People Power United

Prevent Blindness

Prevention Institute

Protect Our Care

Public Advocacy for Kids (PAK)

Public Citizen

RESULTS

SER Jobs for Progress National

SIECUS: Sex Ed for Social Change

Sisters of Mercy of the Americas Justice Team

Sojourners

SPAN Parent Advocacy Network

Susan G. Komen

The Arc of the United States

The Children’s Agenda

The Children’s Partnership

The Kennedy Forum

The Leadership Conference on Civil and Human Rights

True Colors United

UnidosUS

Union for Reform Judaism

United States of Care

Voto Latino

Young Invincibles

ZERO TO THREE

 

State and local organizations

AIDS Foundation Chicago

Akron Urban League

Alabama Arise

Alabama Disabilities Advocacy Program

Arizona Center for Disability Law

Austin Area Urban League

Autistic Self Advocacy Network

Buffalo Urban League

Catalyst Miami

Centro Sávila

Citizen Action of Wisconsin

Citizens’ Committee for Children of New York

Connecticut Oral Health Initiative, Inc.

Delta Dental of Colorado Foundation

Disability Law Center of Alaska

Disability Law Center of Utah

Disability Law Colorado

DisAbility Rights Idaho

Disability Rights Idaho

Disability Rights Michigan

Disability Rights Mississippi

Disability Rights New Jersey

Disability Rights North Carolina

Disability Rights Oregon

Disability Rights South Carolina

Family Voices NJ

Florida Community Health Worker Coalition

Florida Policy Institute

Florida Voices for Health

Free Gift Baptist Church

Greater Baltimore Urban League

Greater Baltimore Urban League

Greater Sacramento Urban League

Greater Sacramento Urban League

Health Action New Mexico

Hoosier Action

Houston Area Urban League

Impetus – Let’s Get Started LLC

Indianapolis Urban League

Inland Empire – Immigrant Youth Collective

Inland Equity Community Land Trust

Kentucky Equal Justice Center

Knoxville Area Urban League

La Unión del Pueblo Entero (LUPE)

Lakeshore Foundation

Lorain County Urban League

Make the Road Nevada

Metropolitan Wilmington Urban League

Mississippi Urban League

NAACP – Mansfield Unit #3190

NAACP Gloucester Branch, Gloucester, Virginia

NAACP Ohio

National Association of Hispanic Nurses Alabama

NC Counts Coalition

North Dakota Protection & Advocacy Project

Oasis Legal Services

Oklahoma Policy Institute

Paraquad, Inc.

PATHS Medical Center

Pinellas County Urban League

Protect Our Healthcare Coalition RI

Safe States Alliance

San Antonio, Texas NAACP

San Gabriel Valley NAACP

Shriver Center on Poverty Law

Sisters of Charity of Nazareth Congregational Leadership

Sisters of Charity of Nazareth Western Province Leadership

South Carolina Appleeseed Legal Justice Center

South Carolina Christian Action Council

South Dakota Voices for Peace

Tennessee Disability Coalition

Tennessee Health Care Campaign

Tennessee Justice Center

The Oregon Primary Care Association

Umemba Health LLC

Unite Oregon

Universal Health Care Action Network of Ohio

Universal Health Care Foundation of Connecticut

Urban League of Central Carolinas

Urban League of Greater Hartford

Urban League of Greater Kansas City

Urban League of Greater Kansas City

Urban League of Greater Oklahoma City

Urban League of Greater Oklahoma City, Inc.

Urban League of Greater Pittsburgh

Urban League of Philadelphia

Urban League of Rochester, Inc.

Urban League of Springfield, Inc.

Urban League of the Upstate

Urban League of West Michigan

Vermont Office of the Health Care Advocate

Virginia Interfaith Center for Public Policy

Virginia Poverty Law Center

Voices for Virginia’s Children

Washington State Association of Head Start & ECEAP

 

c.c.:    Ambassador Susan Rice, Director, Domestic Policy Council, The White House

The Honorable Chiquita Brooks-LaSure, Administrator, Centers for Medicare and Medicaid Services

The Honorable Daniel Tsai, Deputy Administrator and Director of the Center for Medicaid and CHIP Services